Author Archives: David

Day on the Hill with NAMI Tennessee

A few months ago, a friend told me about NAMI (the National Alliance on Mental Illness). NAMI is the nation’s largest grassroots mental health organization. They provide education and support to those affected by mental illness. They also do a lot of work to increase public awareness about mental health conditions. NAMI Tennessee recently sponsored a grassroots advocacy training event in Nashville, and I went!

In addition to receiving training on how to interact with my state legislators, I got to network with other people affected by mental illness. I also got to meet with my state representative and state senator.

This year, NAMI Tennessee is advocating for four things:

State Senator Richard Briggs, from Knoxville, joined us and provided some insights into mental health advocacy and the TN legislature.
State Senator Richard Briggs, from Knoxville, joined us and provided some insights into mental health advocacy and the TN legislature.
  1. We want a $250k budget amendment to expand local Crisis Intervention Teams.
    I’m really excited about the CIT initiative. As some of my readers know, my wife went to jail last summer when she had a mental health crisis and assaulted me. When I had the neighbors call 911, I had no clue that she would be taken to jail. I begged the responding officers to take her to the hospital. They told me that their hands were tied.

    I don’t know if anything would have turned out differently last summer if the officers had been trained. But I do know that police who have CIT training are much more likely to take someone to a treatment facility than they are to make an arrest.

  2. We want stronger laws around insurance parity for mental health & substance use disorder services.
    The TN Department of Commerce and Insurance should report on how they review health plans and hold insurers accountable for providing these services without undue burdens.

  3. We want mental health insurance for those who cannot afford it.
    We want our state legislators to support a bill that would provide insurance for people who don’t qualify for TennCare or for federal health insurance.

  4. Finally, we want more funding for mental health programs.
    Tennessee, like many states, is in desperate need of money for all sorts of programs. We are asking for $34 million to help fund all of these initiatives. We are also asking for $250 million to go into a new Mental Health Trust Fund.

I learned and I networked.

I met with my state representative, Esther Helton.
I met with my state representative, Esther Helton.

Ever since my family’s experience last summer, I knew that I wanted to get involved in advocacy. I vowed to myself that I would go to Nashville sometime in 2020. So when my friend told me about NAMI, I knew this was the perfect opportunity.

This day-long event was a great learning experience for me. When I was in high-school, I participated in a “youth in government” event (in South Carolina), and got to go to South Carolina’s State House. So, in a way, I knew what to expect. But this was the real deal (and I can now say that I’m an experienced lobbyist. Cue the big bucks!)

I met 3 people, who are board members of NAMI Chattanooga, and I look forward to getting involved in this local chapter.

I also had great conversations with Representative Esther Helton, my state representative, as well as Senator Todd Gardenhire, my state senator.

This was definitely a valuable experience for me, and I will make an effort to get involved with more NAMI activities in the future. I will almost certainly be going to Nashville again.

Here’s how you can find help, give help, and get involved for the mental health community.

To learn more about NAMI, visit https://www.nami.org/.
NAMI Tennessee’s website is at https://namitn.org/.
And the Chattanooga Chapter for NAMI is http://www.namichattanooga.org/

A very practical thing that you can do is to call your state representatives and ask them to support increased funding for Crisis Intervention Teams. This is the initiative that I’m the most excited about, and would have impacted my family the most if one had responded to our 911 call last summer.

But you can also ask your legislators to support NAMI Tennessee’s other initiatives as well. If you are in Tennessee, find your representative’s and senator’s contact information at http://www.capitol.tn.gov/legislators/.

Thank you for your support!

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Oppose the Better Care Reconciliation Act

My name is David, and I’m a registered voter in Hamilton County, Tennessee, and I’m writing to urge you to vote NOT on the Better Care Reconciliation Act. I, and people I am extremely close to, would be directly and negatively impacted by this legislation. We have been sick – through no fault of our own.

My Personal Story:
In 2004, I was diagnosed with Non-Hodgkins Lymphoma. That experience taught me a lot about the conventional American health care system. Concepts such as seeking a 2nd (or even a 3rd) opinion to a major diagnosis, maintaining a healthy diet, and making my own informed decisions (and not blindly following the advice of a doctor) are second nature to me now.

I was originally misdiagnosed with a more aggressive form of lymphoma than the one I actually had, and narrowly avoided 2 years of chemotherapy and monthly hospitalizations with spinal taps. In reality, I only needed a small handful of treatments, which were finished 6 months after they started.

My Wife’s Story:
Several years ago, my wife, Lauren, was diagnosed with Bipolar disorder. After two hospitalizations and spending years in counseling and taking toxic medication, Lauren decided to pursue alternative approaches to her health. Over the last two years, Lauren has maintained an incredibly strict nutrition plan which has done wonders. She is stable, has been off traditional medications for months, and feels better than she has felt in years.

However, Bipolar is a chronic disease, and when all else fails, expensive medications can stabilize a patient. When needed, these medications are a good and necessary thing. Through no fault of her own, my wife has a chronic, life-long disease.

My Niece’s Story:
A few years ago, my sister gave birth to a feisty girl named Annie. Unfortunately, as the doctors discovered at the 20-week pre-natal exam, the left side of Annie’s heart wasn’t growing. It was completely missing. Through no fault of her own, Annie was born with Hypoplastic Left Heart Syndrome.

Through no fault of her own, Annie has a pre-existing condition and will need to take medications and monitor her pulse for her entire life.

These illnesses are not our fault. Yet, according to the Congressional Budget Office, all of us might lose health insurance coverage if the Better Care Reconciliation Act becomes law.

What’s more, the CBO says:

  • 22 million Americans could lose coverage over the next 10 years
  • People with disabilities could lose access to Medicaid
  • The elderly will be charged exorbitant rates of up to 5x higher than younger people

This bill claims to be “better” for the American people.

While the ACA is not perfect and certainly needs to be modified, the BCRA is nothing of the sort that helps every day Americans. The BCRA is harmful to me, my wife, my niece, the disabled, the elderly, and the poor.

In short, it is an assault on the lives and the health of all Americans.

I urge you and your colleagues to vote NO.

Sincerely,
David White

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